Thank you Emily, this was very interesting. Am I right in thinking the nuclei in the brain that Dr Komaroff is referring to are called Microglia? I've done some reading on them, including 'The Angel and The Assassin' by Donna Jackson Nakazawa, and I think Ed Yong also talks about them (and sickness behaviour) in his book 'I Contain Multitudes'. Both worth a read if you've not checked them out. It's also super gratifying to hear an expert talk about sickness behaviour and neuroinflammation, as well as vagal signalling, in such direct terms. It's a neat theory and I'd love to learn more about it!
There is a lot of disturbing history when looking into the past of myalgic encephalomyelitis. The more people know about ME the better for us all. I am 34 years since contracting this disease so have lived through much of the politics that buried ME.
Dr. Komaroff let us down when he voted against Ampligen approval when it came up for FDA approval. His view of CFS in the past indicated he didn't recognize the distinct disease of myalgic encephalomyelitisis. I wonder if he would have voted yes & helped fight for approval today.
Thank you Emily, this was very interesting. Am I right in thinking the nuclei in the brain that Dr Komaroff is referring to are called Microglia? I've done some reading on them, including 'The Angel and The Assassin' by Donna Jackson Nakazawa, and I think Ed Yong also talks about them (and sickness behaviour) in his book 'I Contain Multitudes'. Both worth a read if you've not checked them out. It's also super gratifying to hear an expert talk about sickness behaviour and neuroinflammation, as well as vagal signalling, in such direct terms. It's a neat theory and I'd love to learn more about it!
There is a lot of disturbing history when looking into the past of myalgic encephalomyelitis. The more people know about ME the better for us all. I am 34 years since contracting this disease so have lived through much of the politics that buried ME.
Dr. Komaroff let us down when he voted against Ampligen approval when it came up for FDA approval. His view of CFS in the past indicated he didn't recognize the distinct disease of myalgic encephalomyelitisis. I wonder if he would have voted yes & helped fight for approval today.
I think it is important we don't use the label ME when referring to the patients defined by CFS-Fukuda. I discuss the history of those labels here: https://colleensteckelmeiccinfo.substack.com/p/the-meaning-of-cfs-depends-on-who
Hoping that will clarify why it is important we use ME label accurately.