6 Comments

I ca relate to a lot of this...just 2 months in the hospital was almost a half a million dollars...thankfully, insurance covered most

Of it. Still not able to go back to work, it is difficult living on disability.

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And I was in the hospital for 4 months total. Am am still home dependent on supplemental oxygen and that effects everything :(

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Yes, I hear ya. The costs Emily summarized were my out-of-pocket. Total billed with insurance I'm sure is astronomical. PET Scan, and virtually every lung and heart image there is.

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Please let Ty know there may be something he can do about his mitochondria. I was able to reverse my severe fatigue, PEM and muscle weakness by taking this every morning:

- 2 x 100mg CoQ10 softgels (Doctors Best)

- 1 x 250mg Liposomal NMN+ capsules (GenF2O)

- 2 x 500mg L-Carnitine capsules (Nutricost)

- 2 x 440mg Quercetin capsules (Nutricost)

I worked in a university Cell Biology Department lab doing research using mitochondria. They produced a paper called “Mitochondrial Dysfunction in Chronic Fatigue Syndrome” by Brad Chazotte, which suggested some of these agents. Ty should ask his doctor and pharmacist about this.

I would like to know where he was able to obtain tests of mitochondrial dysfunction. Thank you.

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Thank you. I've taken the above before but perhaps not in that combination. Mitochondria testing was from a company called Religen (Mitoswab) through my Long Covid Clinic; RTHM.

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This combination worked wonders for me. The difference was like night and day. Before taking it, getting up to go to the bathroom sent me into bouts of rasping breathing where I struggled for air. My husband had to drag me to the bathroom. Once he didn’t have a good grip on me, and I flopped onto the floor like a rag doll. Then, I was completely bedbound and hardly able to move, even to type on my phone. I often couldn’t move my mouth muscles to enunciate clearly enough for speech recognition software to understand me, but was finally able to save up enough energy to look this article up.

Within a couple of weeks of taking this, I could get up and move around on my own. Soon, my breathing returned to normal, and I could discontinue the hefty asthma meds that had allowed me to breathe at all. Most of my other symptoms improved greatly and dissipated. I returned to normal energy levels for two years.

The dosage form and product you select may determine whether it works. CoQ10 softgels are better absorbed than capsules, and it helps to take it with fatty food. You need Liposomal NMN, and I have conflicting information on whether to take it with or without food (I take without). Also, when I had a relapse this summer after mega over-exertion, I ordered the liquid NMN (NAD+ GOLD) that had worked the first time, but did not get the same effect. It requires refrigeration, and arrived hot to the touch. Switching to the 250 mg NMN capsules did the trick.

I hope this information helps you, and would like to know how you do if you try this combination. Thank you for your information on the mito test.

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